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Events

CDKL5 Canada Walk for a Cure

Saturday, June 17, 2023 11:00am - 2:00pm
Location: Bayview Park Pavilion, Thornbury

  • Join us to celebrate CDKL5 Awareness Day and raise money to support CDKL5 research.
  • Local resident Brynn Ladly has CDKL5 Deficiency Disorder.
  • It is a devasting rare disease that is hallmarked by uncontrolled seizures. Other symptoms include neuro developmental delays, most individuals are non verbal and unable to sit, stand or walk.
  • Wear green and celebrate by attending. 
  • Enjoy live entertainment by Bored of Education
  • AXED mobile trailer will be there
  • Participate in the 2km walk
  • Have a lunch provided by the Thornbury Bakery
  • Presentation by a CDKL5 Sceintist.

Adults $25, under 14 $5. 

Register and learn more about this event at cdkl5canada.ca

 

Contact: Natalie Ladly
Phone: 705-888-3213
Email: nladly@cdkl5canada.ca
Website: https://www.cdkl5canada.ca

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