CDKL5 Canada Walk for a Cure
Saturday, June 17, 2023 11:00am - 2:00pm
Location: Bayview Park Pavilion, Thornbury
- Join us to celebrate CDKL5 Awareness Day and raise money to support CDKL5 research.
- Local resident Brynn Ladly has CDKL5 Deficiency Disorder.
- It is a devasting rare disease that is hallmarked by uncontrolled seizures. Other symptoms include neuro developmental delays, most individuals are non verbal and unable to sit, stand or walk.
- Wear green and celebrate by attending.
- Enjoy live entertainment by Bored of Education
- AXED mobile trailer will be there
- Participate in the 2km walk
- Have a lunch provided by the Thornbury Bakery
- Presentation by a CDKL5 Sceintist.
Adults $25, under 14 $5.
Register and learn more about this event at cdkl5canada.ca
Contact: Natalie Ladly
Phone: 705-888-3213
Email:
nladly@cdkl5canada.ca Website:
https://www.cdkl5canada.ca
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